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Monday, March 18, 2013

Our Story by Jessica White


You know how people say your life can change in an instant? Well believe me, it is true……………..

 
May 25, 2011 my husband Jason and I had two beautiful sons…Peyton was 5 and Preston 3. We were also 29 days away from giving birth to our third child, another son, Parker. We got the most devastating news. Our oldest son, Peyton was diagnosed with a progressive degenerative brain disease called Metachromatic Leukodystrophy or MLD. There is no cure and we were told he would likely die within 5 years. My heart was ripped from my chest that day.

After a lot of discussion with doctors and specialists, Jason and I decided that we would try the only known possible treatment option available which was a bone marrow transplant. The doctors said at best we would only slow down the progression of his disease and he would likely still die before adulthood.

Peyton had an unrelated Umbilical Cord Stem Cell Transplant on September 7, 2011. Within weeks we watched our son lose the ability to stand, walk, sit up, swallow and talk. We have watched his oxygen supply decrease, he has developed osteoporosis, and his feet and ankles have turned inward to the point of not being able to even wear shoes. One day we woke up and life was “normal” and then all of our dreams and hopes we had for our son were shattered.

 Over the last year and a half we have had thousands of hours doing physical therapy, occupational therapy, speech therapy, water therapy, and now our latest is Neurofeedback therapy. Peyton has made huge improvements. He can sit up with assistance. He is difficult to understand but he does speak. He swallows solid food ok but requires thickened liquids to drink but requires about half of his daily calories and liquid through a G Tube that goes directly to his stomach. Peyton can move his legs. He can move his arms. But above all of the rest……..He can smile at my husband and I and he can say I love you.

Today life is so much different than it was 2 years ago.  Peyton is 7, Preston is almost 5 and Parker will turn 2 in June. I would have never chosen this MLD life. But I am glad God chose my son for me. He has taught me more about life, love and perseverance then an entire lifetime without him would have. Like many other parents with special needs children, we struggle every single day, but somehow we make it.

With Hope

Jessica White

 

 

For more information about MLD visit


You can also follow our family’s journey on Facebook

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Friday, March 15, 2013

Comparison is the Thief of joy... (Libby)



People are obsessed with what they weigh..Honestly who cares? I weigh..drumroll......153!! I said it! 1-5-3 and proud. I birthed 3 babies. Pretty much invincible. Like any woman that is pregnant and gives birth to a mirable. Yes, I’m not exactly toned as I would like but it’s okay. I think when I stopped worrying about things and becoming the most comfortable in my own skin was after kids. Well that’s when all modesty goes out the window anyways isn’t it? The doctor and staff of nurses were there when the girls were born and you know at “that” point it doesn’t matter what’s hanging out, coming out, peeing, pooping, whatever...(sorry for the imagery) just get that kid out!!!
Also, I stopped comparing myself to others. Everyone has a different body type, metabolism, eating habits, chemistry, allergies, etc. I mean, I wish all my booty would migrate to my boobs but that’s not happening so I’ll have to deal with it. Ok, I don’t judge anyone’s body, big, little, short, tall. I look at their character as a person. It’s not really fair when a girl talks about another girl and says, oh she’s so skinny, what a “bleep”. Why do we do that to each other? Ya know, I work my ass off..literally for my body. I don’t get to indulge in the foods I want because that’s not going to get me to my goal. And really you can make ANY food into a somewhat healthy meal with a little creativity and Pinterest. :) So why do girls hate on others they really want to look like? If you want it, you can do it, but don’t complain when you didn’t do the work to get there.
I feel like these posts are more rants but I believe we are so strong that drama and jealously get in the way. If you can honestly be happy where you are, but want to be a different size then try this. It worked for me. Ok, stand in front of the mirror naked...eeek..scary. This is pretty honest stuff for me right here. So I went through a divorce this past year and didn’t realize how much stress there was until I caught myself in the mirror naked and I was like WHOA! Where did all that extra stuff come from back there? It doesn’t take long for me to lose muscle tone if I don’t watch it. A couple months of falling in love and comfortable eating out later and this happened. I wasn’t happy until one day it had to change. AdvoCare is my business and if people don’t see me healthy, how am I supposed to help others get healthy? So I had to stand in the mirror and say..I love myself and what this body has done. I’m not going to binge eat and workout like a maniac and think that will help. It took a couple months to get to look like this so it may take just as long for it to come off. So I tried a whole different mind set. I wasn’t just running/working out to lose weight. But just to literally be nice to me emotionally, physically and mentally. Just try it to look in the mirror and say, “I love you” and I’m going to do everything to make you(body) feel, look the best I can. Just like what you would do for your children. It will make a huge difference. Then take a picture as much as you don’t want to from a few different angles. It’ll give you a new perspective on your goals and what’s realistic for you. Then get something for motivation. I just finished one of AdvoCare’s 24 Day Challenges and lost 6 lbs and a dress size! Down to a size 6 and feel amazing. So last night I ordered a Victoria’s Secret swimsuit in a size smaller than what I’d usually wear...Motivation at it’s finest. Also I bought a 40 lb dumbbell and I was pretty excited about it...I’m weird..FitGeek for sure. But it’s the challenge of what I can to  do to get to my next goal that is really exciting and how better I’ll feel when I accomplish it.
So this week’s workout is easy. Circuits again. If you have some sort of weight..Even a child will do...
Set a timer for 30 min and do
1 min plank(on elbows)
1 set of 15 squats
1 set of 15 kettle bell swings
Lay on back and do 1 min of bridge (lifting butt up in the air)
10 push ups.
Do as many rounds as you can. Start with 3-4 and go up as you get more endurance.
I started with a 20 lb kettlebell and it got too easy and I wasn’t getting sore so I bought a 40 lbs dumbbell.


Recipe
Mini Meatloaf
1 lb ground chicken or turkey
1 egg
I cup Mozzarella Cheese
A little coarse sea salt

McCormick Gourmet Seasoning Mix(Garlic and White Wine Chicken Scaloppine)
Whatever kind of veggies you like. I use bell peppers, celery, avocado, etc
Mix in a bowl and put into muffin tins..I actually used the silicon ones from the dollar section of Target. No stick means less dishes and they keep their moisture as well.
I sprinkle cheese on top as well and they get a nice crunchy top. The girls eat them and get their veggies too.
I love the McCormick Seasoning! It gives it soo much more flavor without having a ton other ingredients on hand!
Bake at 375 for 30 min or until inside is done.
Enjoy!
Other ideas I like is to put salsa in them and give them a kick.

Dessert!!! I LOVE THIS ONE!
Ok I have our AdvoCare Muscle Gain which is our protein. We have Vanilla and Chocolate and I get a canister of vanilla and make sooo many different things other than just shakes.

So I cut up 1-2 apples (leave skins) and put them in a glass dish. I use one scoop or two depending on servings. I just do one because it turns out so good I would eat it all! Anyways one scoop of protein powder into a separate dish with one cup Old Fashioned Oats and 1/4 cup slices almonds or walnuts. A tsp of cinnamon and Add milk until it’s an oatmeal consistency. Then pour honey over all of it. Probably at least 1/4 cup.  Pour it over top of apple and pour a little more milk into the bottle of the pan so it doesn’t burn and Bake for 20-30 min on 350..Ok yum. When it comes out it tastes like baked oatmeal. I made some and put it in the fridge over night. The next day it tasted even better. Exactly like apple pie filling with out the crust! No sugar, no flour, sooo easy and I have also tried this and it’s honestly successful with any fruit. I have tried frozen peaches, and frozen triple berry! Blueberry, Rasberry and strawberry! My girls went gaga over it!
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Thursday, March 14, 2013

Things you should know about me-Lindsay

I own two businesses, work at the Y two days a week, take college classes two days a week, am a full time wife, and mommy to 3 amazing kiddos!

I have worked in banking, restaurant management, insurance and childcare...I consider myself to be extremely well rounded lol

I changed my major in college 4 times and am now back to my original choice, again, well rounded!

I have a serious Cherry Pepsi addiction

I am not the most organized person in the world so I have to write reminders for everything. I would not know how to function without my calendars (yes calendarS)...organizational suggestions are welcome!

My kids are my whole world and I can't stand being away from them

I love to travel and have been so lucky to have traveled internationally to Mexico, Dominican Republic, France, and the UK.

I met my hubby while working at Abercrombie 10years ago

I cheered for the Steam Wheelers after high school

I love the sunshine!

I got married at the haunted Stanley Hotel in Estes Park, Colorado

My favorite color is pink

I feel like I should have an AA meeting to attend for Pinterest, I literally have to stay away from it or I get lost in it for hours!

I like even numbers and unlike Carly do most things in even numbers, lol

Speaking of Carly, I live about 8blocks from her and agree that that first cup of coffee in the morning is the best

I have one sister and three brothers

My favorite quote is "Life is not measured by the number of breaths we take, but by the moments that take our breath away"
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Wednesday, March 13, 2013

Win it Wednesday!!!

Win this just in time for St. Patty's Day!!!
 

All you have to do is comment "Win It!" below. Winner will be chosen at random and must be available to meet to receive this headband.
 
Luck of the Irish to you!!!
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Tuesday, March 12, 2013

Things you should know about me...(Carly)

...if we are going to be BFF

(another blog that I follow did a post like this last week and I loved it...I was able to learn fun lil tid bits about her life...stuff that her bff's know so here's my version)

- I feel like I have to knock on wood after using the phrase (and if I can't find wood, I will knock on my head)

-I do most things in increments of 3 (its my favorite number)

-My mom used to tell me that nightmares wont come true if you tell them to someone, so to this day I will wake my hubs up to tell him my nightmare in the middle of the night and it makes me feel better

-Its impossible for me to be in a bad mood when its sunny and warm outside

-I share a birthday with Zach Morris

-My hubs and Lindsay's hubs have been friends since they were 10 and were college roommates. Needless to say, they have HILARIOUS stories about eachother and the pranks they pulled. PRICELESS!

-I have never been very competitive (maybe thats why I'm no good at sales, haha)

-My hubs and I have had a zombie apocalypse plan for awhile now (def started talking about it as a joke but the plan sorta makes sense...haha, we are weirdos)

-I really enjoyed the hospital food both times I have been in the hospital

-I'm sort of high strung but def not high energy (thank you Anemia)

-I want to believe in mediums and I used to watch John Edwards all the time (remember that show?) but I can't help but be a little skeptical of the Long Island Medium

-I love hearing about my hubs upbringing in a small town/farm bc I spent my first 18yrs of life in Chicago (like the city not the suburbs)

-I believe in "live and let live"

-It takes me awhile to warm up to new people

-I was a child welfare case manager before becoming a SAHM and I still think about some of the kiddos on my case load...and sometimes even google their parents to see if they are staying clean and out of trouble

-I love Diet coke and the first cup of coffee in the morning

-I have a craft cave (no man cave in this house)

...and that's all folks...I would love to learn a thing or two about you. We love our fb fans and blog readers...leave a comment with something that your BFF should know about you!!!


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Wednesday, March 6, 2013

Win it Wednesday!


 
Yeah, it's Win it Wednesday again!... Just another perk to Hump Day!

 We have something really great for you today and we are so excited to share! TCOT's favorite health and wellness lady, Libby, is giving away an Advocare goodie bag. It will include a Blender Bottle, Spark(my absolute fav!), Snack Bar, and Meal Shake.

 For those of you who have not found the amazingness that is Advocare this is for you!!! Even if you have tried Advocare you can play along too :) All you have to do is click "subscribe" to this blog AND comment "win it" below. Make sure to do BOTH to be eligible to win. You will have until tomorrow (Thursday) at 11:59pm to do this! Winner will be posted first thing on Friday morning.

 BIG thanks to Libby for sharing these wonderful products!

Let the games begin, GOOD LUCK!!!

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Tuesday, March 5, 2013

My Trip to Florida -Carly

So Lindsay and I totally didnt plan it this way, but my family took a trip to Florida a week after Lindsay had gone...different cities but warm nonetheless.

The hubs, kids, and I decided it was time to make the trip back to Fort Myers, FL to see old friends/family, get some sun, and RELAX! We havent been back to Florida since our son was 3mo old (he is now 2.5yrs old) so we had lots of catching up to do.
We kept it a low key vacation with no plans set in stone. This help set the tone of zen and relaxation rather than rushing to get things done or get the kids ready. We went to the pool almost everyday, visited the beach, did lots of shopping (too many good outlet shops!), lots of eating and visiting with friends!

The MIL (mother in law) lives in the condo that we stayed in while we lived down there so thankfully, we had a place to stay that was already baby proofed...although her chihuahua is NOT exactly baby friendly (thank goodness my kids still have all their fingers and toes).

My kids love the SAND, WATER, and the elevator buttons...yep, you read that right...It was a cinch to get MJ out the door by merely mentioning the elevator and pushing the button. SCORE 1 for the parents!



Here are the highlights from our trip:

-Seeing MaryBeth (and her sweet lil baby bump) and Adam and see them intereact with MJ. They were his first baby sitters EVER! The hubs and I had NO family in Florida when we lived there so these two were the next best thing. We are so lucky to have them as friends! They are going to be phenomenal parents!
Oh and Adam cooks a mean pork chop...mmmm!

-Visiting with my old coworkers (fondue with teachers/counselor friends AND chik fil A with my old child welfare cm friend) It was just like old times...except now we are older and don't drink as much (haha)

-Meeting up with an old student that was close to my heart. She has grown into a very mature and responsible adult. It brought tears to my eyes to see how far she has come!

-Watching my kids play at the beach and in the water at the pool

-Eating the best BBQ at Sonny's BBQ ( I miss that place)

Good times Good people Great Trip









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